Fourteen years old girl with type 2 spinal muscular atrophy wants to die

Fourteen years old girl with type 2 spinal muscular atrophy wants to die

Jerika Bolen, a 14-year-old patient with type 2 spinal muscular atrophy, has taken a painful decision to die. There is no cure for the condition presently. Those who contracted it die in their teenage. The teen had struggled a lot before making this decision. She underwent 38 surgeries and lived a life of intense physical pain.

Jerika from Appleton, Wisconsin decided to die a month ago. The local newspaper described the girl as somebody, who has shiny purple hair, love for alternative music and addiction to Facebook. Jerika and her mother, Jen Bolen, arranged hospice care in early June. The teen is surviving on the ventilator, which helps her breath 12 hours a day.

Jerika will go without the ventilator after summer as she wanted to live through summer, so the ventilator is likely to be pulled by the end of August. Presently, both the condition and pain of Jerika are getting worse with the time. She only could move some part of her face and her hands. She would gradually lose complete control over her hands and face. Similarly, her pain also would be worse.

After putting off ventilator, there is no idea when she’ll die. When Jerika shared her decision with her mother that it’s over for her now as she has suffered a lot of pain, Jen could not bear the decision by her daughter and suggested her to go on more pain killers. But at the end accepted it’s her daughter life and her own decision and that she is old enough to take her decision.

“I know she’s only 14, but she’s old enough to decide. It’s her body and it’s her pain”, said Jen.